DudleysMom here. It looks like some people have read this post, even though no one offered me any help. Maybe someone can be helped by the crap that I went through.
Well, after going to 7 surgeons, I finally found a surgeon who was willing to remove the painful lump that resulted from my stereotactic biopsy ... 22 months later. Yes, you're reading that right. Almost 2 years of pain. Two UNNECESSARY years of pain.
It was something called PASH, pseudoangiomatous stromal hyperplasia, and if PASH causes pain, the treatment is excision. PASH is a benign growth. I had been expecting either a foreign body reaction (from the titanium marker) and I thought the surgeon was expecting scar tissue and / or possibly a damaged nerve. My pain in this area of my breast is now almost completely resolved, and the surgeon also corrected my large hypertrophic scar while she was operating (I now have a fading thin, linear scar that I think will be cosmetically quite acceptable). My nipple now points in the direction it used to be. I would like to say that I would like to be able to do this. Seven surgeons and five radiologists misdiagnosed this as 1) scar tissue 2) fat necrosis or 3) chronic hematoma. That's a lot of doctors guessing wrong, and not listening to the patient when she says "it can not be a necrosis, because it hurts." One ****** had me put capsaicin on it, which just burned the skin (I believed it was "phantom pain", what a douche).
I'm still suffering from severe fibrocystic disease , But my daily torture has been reduced somewhat, since at least I can wear a supportive bra (when my biopsy was really bothering me, I could not tolerate bra and had to spend most of my day lying down with an ice pack ). I took tamoxifen for four months, which definitely helped my pain, but I've had to stop at least temporarily because of a side effect causing a problem with my eye.
I think it is ridiculous how BAD the medical profession is about treating breast pain. Shame on them. (I do not like my current surgeon somewhat better.) I can not imagine how bad it is for women suffering from chronic pain from mastectomies-I'm sure they are told, as I was, that they are incredibly ungrateful that they Are not dead from cancer. If you're curious, the excision procedure was remarkably better than my stereotactic biopsy (two weeks of a minor hematoma versus 6 months of age).
Of a major hematomal, two weeks off from work versus 6 weeks). If I need another biopsy, it will be excisional. I've come to believe that the major advantage of a stereotactic biopsy is that it costs insurance companies less. The actual reason why a marker is necessary for this type of biopsy is that a severe hematoma is COMMON that if there is a cancerous finding, the hematoma might make it impossible to do the lumpectomy. Ask your doctor if you think I'm wrong.
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